Sandy Springs resident Andy Lipman outlived the 40-year life expectancy for Americans with cystic fibrosis five years ago, and his book chronicles the lives of other survivors.
The disease, which is also common in the Jewish community, affects more than 30,000 people in the U.S. alone and around 1,000 new cases are diagnosed each year. This book aims to provide a very human face to some of the people living with the disease.
The number 65 is based on the way children are often taught to pronounce the disease, “65 roses.” Among those 65 are a woman who has scaled Mount Everest, a circus acrobat, and a fighter who secured approval for breakthrough CF drugs in Ireland.
Lipman’s fourth book, “The CF Warrior Project” involved interviewing more than 500 people around the world, and while only a handful could be featured, Lipman has plans to include more of those interviews in a future release.
“Now in my mid-40s, I thought a book about people living longer with cystic fibrosis was necessary and long overdue,” said the author. “I’m not just talking about people who are living their lives, but people who are also accomplishing amazing things while doing so.”
Summarized from the AJT’s May 15, “Cystic Fibrosis Warrior Writes Stories of Survival” by Roni Robbins.
The book will be featured at 10 a.m. Nov. 14.